Video | Patient Story: Marcel (Child With Muscular Dystrophy)
Video | Patient Story: Marcel (Child With Muscular Dystrophy)
Sep 29, 2021
choosept.com
Raising a child with Duchenne Muscular Dystrophy means living in a world that never stops shifting beneath your feet. You’ve pressed pause on parts of your own life, rebuilt routines more times than you can count, and learned to navigate medical and support systems most people never even hear about. You’ve weathered transition: new equipment, new specialists, new stages of progression, and somehow you just keep showing up. You learn, you adjust, you make the tough calls with a mix of love, fear,
0:13
Raising a child with Duchenne Muscular Dystrophy means living in a world that never stops shifting beneath your feet. You’ve pressed pause on parts of your own life, rebuilt routines more times than you can count, and learned to navigate medical and support systems most people never even hear about. You’ve weathered transition: new equipment, new specialists, new stages of progression, and somehow you just keep showing up. You learn, you adjust, you make the tough calls with a mix of love, fear,
4.6K views5 months ago
FacebookHarrison & Duchenne - Raising Awareness of …
Muscular Dystrophy In Children: 6 Types, Symptoms & Treatments
Muscular Dystrophy In Children: 6 Types, Symptoms & Treatments
Mar 22, 2022
momjunction.com
Every child deserves the chance to shine ✨ Let's power up their future together. | Muscular Dystrophy Australia
2:20
Every child deserves the chance to shine ✨ Let's power up their future together. | Muscular Dystrophy Australia
136.1K views7 months ago
FacebookMuscular Dystrophy Australia
When it comes to Duchenne Muscular Dystrophy, what a parent sees is more than just the diagnosis, it’s the quiet courage behind every struggle. She sees her child endure long stretches when he’d rather be playing. She watches lose a little physical strength every day and try to find solutions to find other ways to continue with his favourite activities, if possible, or invest time into other or new interests. Parents help their child get ready for therapies when he’d rather just stay home and be
0:11
When it comes to Duchenne Muscular Dystrophy, what a parent sees is more than just the diagnosis, it’s the quiet courage behind every struggle. She sees her child endure long stretches when he’d rather be playing. She watches lose a little physical strength every day and try to find solutions to find other ways to continue with his favourite activities, if possible, or invest time into other or new interests. Parents help their child get ready for therapies when he’d rather just stay home and be
62.9K views5 months ago
FacebookHarrison & Duchenne - Raising Awareness of …
Parenting a child with Duchenne carries a responsibility that goes far beyond the usual roles of motherhood or fatherhood. It means becoming a protector, advocate, decision-maker, and steady presence in the face of uncertainty. Our responsibility is not just to extend life where possible, but to protect quality of life. To ensure our child is cared for with dignity, spoken to with respect, and surrounded by love - always. This is not something you clock in and out of. It’s a sacred responsibilit
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Parenting a child with Duchenne carries a responsibility that goes far beyond the usual roles of motherhood or fatherhood. It means becoming a protector, advocate, decision-maker, and steady presence in the face of uncertainty. Our responsibility is not just to extend life where possible, but to protect quality of life. To ensure our child is cared for with dignity, spoken to with respect, and surrounded by love - always. This is not something you clock in and out of. It’s a sacred responsibilit
4.2K views3 months ago
FacebookHarrison & Duchenne - Raising Awareness of …
Congenital myopathy vs muscular dystrophy | Dr. Arshad Mehmood - Child Specialist
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